Ashley Mashley

story of my life and random ramblings..

How Cancer Changed Our Family – Part II

Nanny was through fighting the cancer. (Not done–she always said cakes are done, while she was through.) She didn’t want to go to a nursing home or hospital, so my mom found her in-home hospice care. Not all of the family agreed, some thought she shouldn’t be “giving up.” But Nanny believed she had lived a long and fulfilled life. She was 72 when she was put on hospice care.

The first company that was chosen unfortunately did not work out since they would forget to bathe her, among other things; they were awfully neglectful. Another hospice company was called–American Hospice–was preferrable, but the process was still confusing.

Hospice is not a place, but a type of care. As the American Cancer Society explains, “hospice care provides humane and compassionate care for people in the last phases of incurable disease so that they may live as fully and comfortably as possible.”

Home life changed drastically. People were in and out of the house–social workers, nurses, home health aides. It was pure chaos. Nurses were different every time, usually we didn’t even know what they were there for in the first place. They constantly had to explain to us what they were doing during the visit. New equipment was brought in, a new medical bed, bath chair, the walker was replaced with a wheel chair. She could be moved from the bed to the chair so she wouldn’t get restless throughout the day, but her favorite place to sit was in her old rocker.

The family didn’t have the resources to stay with Nanny 24/7, but she needed round the clock assistance. My mom immediately turned the search to her best friend, Connie, who was out of work at the time. Connie was close to the family before, but after this ordeal, she has become one of the family. She took care of Nanny like she was her own mother. We will never be able to give enough thanks to Connie for taking care of Nanny in such a loving and caring way.

Every day was a long process for her caregivers, I was just a witness to the painstaking actions that had to be done daily. They would take her blood pressure and prick her finger for her blood glucose levels. I couldn’t bring myself to prick her, even though she was used to it, but I did learn to put strips in the lancet.  Many, many other measures were taken–but I will spare you the details.

She had shared her feelings, saying she felt like a burden to the family. It was an extremely difficult time, but she was not a burden. She was our grandmother, mother, sister, cousin, friend–she was very important in all of our lives.

Her eating and sleeping habits changed often. She began to eat less and sleep more. Connie made her full meals, of which she would only take a couple bites. She became finicky about food and refused certain foods. She loved popsicles but adamantly did not want the blue popsicles, they “tasted funny,” as she said. When she no longer wanted to eat, we would swab her lips with water so she wouldn’t be dehydrated. If she preferred a taste of something different, we would swab her lips with juice.

Nanny slept all times of the day when she was bedridden, but told us she had problems sleeping at night. I can only guess that she would watch TV and pray. She was a very religious and spiritual woman. She kept a rosary by her bed and would recite her Catholic prayers. Eventually she would silently hold the rosary, but I’m sure she was repeating the prayers in her head. I loved this side of her; she had strong convictions and would not budge from them.

Nanny was always a very positive and outgoing person. At the last stages of her life, she began to fade. She became very quiet and preferred to watch TV, especially the novelas which are spanish soap operas.

Many loved ones would come to visit her in the evening and sit and talk with her. It was very energy draining for her. On several occasions, family would visit from Dallas. My room became known as the “guest room,” and I would stay with my fiance at the time. (I’m no longer with him, but that’s another story.)

I felt the easiest time to talk to her was when she was tired. She looked asleep but I could tell by her facial cues that she could hear me. I may not have said everything I wanted to say, but I told her how I felt. I expressed to her that when she felt ready, she could go. The family would be okay. I’m sure other family members told her the same thing..

No Comments »

How Cancer Changed Our Family – Part I

2009 was a difficult year for my family. I was living at my mom’s house with her, my stepdad and my grandma, whom I lovingly called Nanny.

Early that year, Nanny had a minor stroke but was still able to function and go to work everyday. Not much later, she had another  stroke and her health started to decline. The family thought she should quit her beloved job. She worked for the state of Texas taking calls for Medicare and Medicaid. Although she had some very angry and frustrated people on the phone, she dealt with them politely and had a passion for helping people. She refused to quit her job and cried in frustration. Her co-workers agreed with the family; the best decision was for her to stop working. Nanny didn’t want to accept the reality of the situation, but she had no other choice.

After that last hospital visit, the doctor found that Nanny had stage 3 kidney cancer. At the time, the best option was surgery. Radiation wasn’t a viable option. Nanny decided to take her chances with the surgery. They had planned to remove the cancerous cells; it was a 50/50 bet. Her operation was scheduled very early on a weekday morning. Mom had gotten Nanny and I ready to go to MD Anderson. It was still dark outside when we left the house.

Making our way to the designated area was one of the longest walks I’ve ever had to take. The three generations walked through several lobbies, halls, waiting rooms, past the library and cafeteria. Being in a cancer hospital was sad in itself, but the part that really made me tear up was going through the children’s section. Kids of all ages, many bald or with caps, with their tired parents. Several of the children were more lively than their parents. I wondered how many of them were going to make it and said a short, silent prayer for all of them.

We ended up in the waiting room for the patients having surgery. The room was bigger than I expected, in fact, the room was so large it had sections so you would remember where you were seated. It was a somber feeling, everyone there was brought together for the same reason and it wasn’t a happy one. My mom filled out pages of paperwork and we waited for them to call her name. Once Nanny was taken back and prepped, my mom came to sit with me once again. People were pacing the halls, sleeping in the uncomfortable chairs, reading books, anything to get their mind of their loved one.

We were told the surgery would take a certain amount of time, but it surpassed the time limit by hours. We were as frantic as the other families, prying for information from anyone we could find. After talking to the doctors, the nurses would pull each family into small rooms, letting them know the surgery was through and the doctor would be out later to inform everyone of the outcome.

After another hour or two of anxiously waiting for the news, the doctor called us into one of the rooms. By that time, more family had shown and the tiny room was full of people. He informed us the surgery did not go as expected. The surgery had caused the cancer to spread even more. Nanny was forced with a decision: should she keep fighting against the cancer or let it run its course?

She kept up the fight; there were countless hospital visits, some overnight, some for several days. There were unexpected setbacks at every turn. One time she kept losing blood and had to get frequent blood transfusions. Each family member would take a turn spending the night with her, we never wanted her to be alone. I’m not sure when, but at some point she was confined to a bed and wheelchair. She could no longer walk on her own. Bringing her back to the house was a difficult task and took a few people to move her. It was after that, that she had decided she had enough. She didn’t want to go through the hassle of any more trips to the hospital. She was done fighting against the inevitable.

No Comments »

Giuseppe

Giuseppe–he’s my hospice patient. Its pronounced juice-eh-peh, he’s from Italy. I met him yesterday along with his courageous wife and a nurse showing me the ropes. I drove up to the gate to see the nurse, Mary, waiting for me. I followed her through the gate and into the nursing home community. She brought him a banana since the homes are usually lacking in fresh foods.

As we walk into the nursing home, we’re greeted by a warm smile who tells us to sign in–especially since I don’t have my name badge yet. We do as we’re told, sign in and use some hand sanitizer. Have to be sanitary! The lady at the front desk doesn’t know what room Giuseppe is in, so we arrive at the nurses’ station and wait on someone to help us. I have a look around and see all these elderly people sitting in their rolling chairs, some sleeping, some just glad to be outside of their room. My eyes instantly fall on this elderly man in a dark, striped shirt. He stared right back at me; I had a feeling that he was my patient.

A nurse arrives to let us know that Giuseppe is in fact the man in the striped shirt. We walk up to him to let him know that I’ll be a volunteer coming to visit him weekly. He nods in acknowledgement. After moving him to his room, his wife—Vita—entered. She gave him a hug and we introduced ourselves.

The room was small and being shared with another person, so the four of us took a tour of the building. Giuseppe knew his way around and would signal in the direction he wished to go. I had a turn to push him in his reclining wheelchair. It was difficult to maneuver on turns, but I eventually got the hang of it. His wife took over though, I felt as if I wasn’t going fast enough for her. Vita has been taking care of him for years, so I’m sure she didn’t like someone else taking the reins.

We stopped in a large, empty waiting area so Giuseppe could sip his coffee and sat down for a chat. They were both from Italy, but moved to America in the 70′s. They will be married for 35 years this October. They have two sons and three grandchildren. Unfortunately, one son lives in Phoenix and the other travels for work. He had tons of pictures of his family around in his room. There was also a picture of a large ship; his wife said he used to work on the cruise ship. She talked of their life together and a month long trip to Italy with him and their kids. Giuseppe suddenly had a heart attack when they returned and later had a brain tumor which was removed with surgery. He has been confined to a wheel chair for 10 years. He didn’t talk much. I don’t know if he doesn’t like to talk or if it’s difficult for him since he has lung cancer.

Giuseppe was restless, struggling to move his leg up and down, up and down. He wanted to leave the area and go outside and shortly back to the room since it was so hot. When we got back to the room, we said our goodbyes. I hugged Giuseppe; he gave me a kiss on the cheek, which I returned. What a sweet old man! I gave his wife a few hugs before we left. She started tearing up and I’m a very emotional person, so I did the same.

It was a moving experience for me. Knowing who he was before I was told by the nurse, it’s as if we already had a connection. I can already tell he is a very sweet man. I would hold his hand and he wouldn’t let go. And the unexpected kiss on the cheek was just the most charming gesture!

2 Comments »

Follow

Get every new post delivered to your Inbox.

Join 125 other followers